All posts filed under: Hospitalizations

Thanking Your Pit Crew

Just a quick post today – as I’m sure the case is with everyone, it’s been a crazy couple of weeks and things don’t let up until next week.  My energy levels are lagging this week due to work and holiday engagements; while fun, late nights definitely take their toll.  Last night was our company holiday party that I set up and we feasted on Argentinean cuisine from a local restaurant, so I just finished some leftover empanadas with chimmichurri for lunch.  It was delicious, but now I’m ready for a serious nap. Anyway, of course it’s the season of giving, and if you can make the time, it is always a good idea to give some small gifts to your team of doctors whom you work with regularly.  Given the multi-system nature of Crohn’s, my team or “Pit Crew”, as I like to call them, is made up of my PCP, my GI doc, my Hematologist, Surgeon, Chiropractor and masseuse.  The gifts don’t have to be anything fancy, but I think it is important …

My Year In Review

As I write this, it has been almost a year to the day that I walked out the door of my hotel for the last time and took the proverbial “jump off of a cliff” into the unknown.  As I was walking the dogs this morning, I marveled at how a year could have passed already, and wondered where the time had gone and what, if anything I had accomplished.  If you’ve read anything I have posted before this, you know “accomplishment” is something very important to me and, like it or not, something I use as a scale by which to rate myself.  It may not be healthy, but it is what it is. Of course, I am also painfully aware of some of the limitations that I have based on having Crohn’s for so many years, not to mention surgeries, etc; I have become much more sensitive to this over the last year, that is for certain.  This time of year when the social engagements are many and my obligation to some of …

Surviving a Hospitalization

It goes without saying that at some point, if you have IBD or a related autoimmune disease, you will likely be hospitalized; some more than others.   This is why I always travel to the ER with my at-the-ready overnight bag, because you never really know when an admission will be needed.  Everyone’s “necessities” may be different, but below is a list of what I usually keep in my bag: Basic toiletries Toilet paper & Cottonelle wipes (the hospital grade TP is murder on my poor bum) Earplugs (helpful for blocking out noisy IV pumps and possible snoring roommates) Sleeping mask to block out light from the corridors Cell phone charger Reading material Loose, comfortable clothing with open necklines to allow for access to my port (tanks with built in shelf bras, yoga pants, etc.) Socks and a robe Heating pad (they hardly ever have them in the hospital anymore, and I’m spoiled by my awesome infrared model, so “Sparky” comes with me) If you are in the hospital often enough (hopefully not), you may also want to invest in …

Bowel Obstructions and NG tubes

Bowel obstructions are something that many with IBD have to deal with, whether it be on an occasional basis or something more frequent if issues other than food consumption are at play.  For potential obstructions, there are a few signs to look out for: severe abdominal pain (not sure if everyone’s is the same, but the only way to describe mine is that it starts out like someone is kicking me in the stomach and usually culminates with me feeling like I’m being ripped in half at the midsection; this usually is paired with some Linda Blair-like head spinning once I’m at the point of going to the ER until the happy juice is administered), nausea, vomiting and a lack of bowel function (for full obstructions, you will be unable to defecate or pass gas, though you may be able to have some very liquid stool with a partial obstruction).  What I will detail below is simply my own personal plan of attack when the initial signs of an obstruction hit; I want to be …