All posts tagged: doctors

Latest Hospital Stay, My Thoughts on Hospitalists, and Why I Am a Pain in the Ass Patient

So I had another post all ready to go up, but then I was hospitalized again last Monday night due to another bowel obstruction and a few things came up during that visit that I thought were a bit more important for the time being.  I can’t really say that this hospitalization came out of the blue, as I unfortunately missed my weekly dose of Humira at the very end of January because my husband and I were stuck in Boston for five extra days due to the blizzard that struck.  We had flown out there for the annual memorial service for my father-in-law, and at the time we left, no storm had been predicted for that weekend.  With my pills, I normally bring a few extra days worth in case of emergency, as I did this time, but traveling with injectable medications that need to be refrigerated at all times is a major pain in the ass.  Specialized kits tend to only keep the medication cold for a limited amount of time, and airlines …

Thanking Your Pit Crew

Just a quick post today – as I’m sure the case is with everyone, it’s been a crazy couple of weeks and things don’t let up until next week.  My energy levels are lagging this week due to work and holiday engagements; while fun, late nights definitely take their toll.  Last night was our company holiday party that I set up and we feasted on Argentinean cuisine from a local restaurant, so I just finished some leftover empanadas with chimmichurri for lunch.  It was delicious, but now I’m ready for a serious nap. Anyway, of course it’s the season of giving, and if you can make the time, it is always a good idea to give some small gifts to your team of doctors whom you work with regularly.  Given the multi-system nature of Crohn’s, my team or “Pit Crew”, as I like to call them, is made up of my PCP, my GI doc, my Hematologist, Surgeon, Chiropractor and masseuse.  The gifts don’t have to be anything fancy, but I think it is important …

Helpful Phone App for Medical Records

Keeping track of your medical history can be quite a task, not to mention making sure that all of your physicians are kept in the loop. Thank god for the My Medical app (available via multiple platforms), which is only about five dollars to download, and may well be the best money you will ever spend.  This handy tool allows you to store medical information for multiple people, each with their own individual profile.  It will prompt you to enter everything from basic general information and emergency contacts to current and past medications, tests, procedures, surgeries, allergies, diagnoses, immunizations, hospitalizations, complete physician information, family history, health insurance….the list goes on and on.  You can add notes for certain hospital stays (mine typically reflect which medication combinations tended to clear my obstructions most quickly) AND, best of all, you can wirelessly print the entire document or email it at the touch of a button.  Being that we are rather frequent flyers at the local ER, I have three copies printed up at all times (one in …

Establishing a Team of Doctors

One of the more important subjects for those with IBD or any sort of autoimmune disease is establishing the right team of doctors. Finding good ones, keeping them, and developing a relationship that allows for a sense of trust, which I feel is hard to come by these days.  Let’s face it, if you’re reading this, it’s not likely that you are going to be the “once a year for my annual physical” type of a patient.  You’re much more likely to be the “I need your cell phone number, vacation schedule and access to your Outlook calendar” kind.  And it’s not just one doctor you’re looking for, but likely a combination of two or even four that must talk not only to you, but to each other, to make sure everyone, including the patient, is on the same page.  This is a tremendous feat and involves a pretty kick ass Primary Care Physician.  Make no mistake about it: you will need an excellent GI doc, possibly a skilled surgeon and maybe even a hematologist, …